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New update -- 10 months after Charlie's death

Facing the approach of Halloween, Charlie's father, John Waller, remembers Charlie's last days and reflects upon his son's life, his memory and the impact on the surviving family.

Click to go to Updates

St Mary's Great Tew

Charlie Waller
died on December 5th, 2013, aged five.
He had been diagnosed on April 1st, 2011, with DIPG, an inoperable brain stem tumor.
A memorial service was held at The People's Church in East Lansing, Michigan on December 19th, 2013. A bench in the churchyard of St Mary's, Great Tew, Oxfordshire, (see above) was dedicated to his memory on Sunday, July 13, 2014.
(Mouse over image above to zoom in to bench)
Background and introduction
Background to the family story and the scope and purpose of the related web sites.   Charlie's parents report periodically on events in Charlie's life and on the progress of the disease.   Information about DIPG pediatric brain stem tumors and prospects for palliative treatment.
Abigail's Journal
Abigail's Journal
Contact and feedback
Contact and Feedback
Art for Charlie Foundation
On this companion site, Charlie's mother records the raw emotion of her experience in the form of imaginary letters to her son.   The Contact form is an opportunity to leave a comment or send a message to the family.   Charlie lives on in the Foundation established in his name.
Esther & Charlie   Art for Charlie
Art for Charlie
The Foundation that was
inspired by Charlie

Honoring Charlie's memory by
helping other children and
supporting families who have lost a child

Charlie's Memorial Service

Father's and Mother's eulogies

Esther's poem to her brother